Note from Isa

Hi, friends, I just spoke to Stacey and she wanted me to say hello for her. She is still quite weak, although she sounds stronger than when I saw her on Thursday. She wants to say her cell phone is out of order so she can’t be reached that way. But she welcomes phone calls at the hospital 650-498-3051 but has limited energy to talk for long periods. She is still fighting nausea and has limited appetite. It’s those powerful antiviral drugs that probably are doing that to her. But luckily, her CMV is gone according to blood tests. Any progress is to be celebrated! She still has considerable pain in her side, which I can only imagine is extremely draining. And the stubborn chylothorax persists, which creates the non-fat diet restrictions that make weight gain even harder. She is able to walk only for short periods, and because of her pain meds, needs someone to help her (including a cute respiratory therapist today!). Oh, this is such a test of patience! She has hung in there for 6 weeks already. My hope and prayer is that each day is a bit brighter. Stacey thanks everyone for all their love and support. She misses you all, esp. those with whom she has been out of touch, and regrets she can’t do a whole lot of emailing to everyone these days. She sends her love and appreciates everyone checking the website regularly for updates. Sometimes it’s hard for her to repeat the medical details to each person and likes it when people catch up on her status through this means. Take care and keep those prayers going! Thanks, love Isa