Her Journal

In her own words

Stacey’s own entries โ€” humor, hospital stays, lungaversaries, and life, in the order she wrote them, with notes from friends woven in, often written in reply to her.

  • We Survived the Heat Wave

    Greetings from California, the land of 105 degree temperatures or higher…record highs that caught the whole Bay Area by surprise. It was so hot, we could barely move. Hardly anyone had air conditioning, and stores quickly sold out of fans and ac units. I survived by frequenting air-conditioned places: the library, the shopping center, the…

  • andy (stacey cusin

    many people cann’t remember any thoughts prior to 5 years of age, but i remember may 3’s and even have a memory from my 2’s. my first memory is the day i met stacey i remember?the couch along the west wall of our living room, brown and ugly. laura entered the living room from the…

  • cool journal!

    Wow, Stacey, you weren’t kidding about your new blog. It’s very cool! I look forward to reading more of your stories. ๐Ÿ™‚

  • Hi Stacey, and Nice Guestbook Tori

    Hi Stacey! Good job with badminton and climbing. Your new guestbook looks great. Great job Tori! Am back from Vietnam and will call you soon. Take care in the meantime! -Felix

  • visit memories

    Dear Stacey, Oh, yes, what a wonderful?time?. .?the magic you make with stir fry. . .Delicious!! You are generous in reporting my badmitton skills. Your technique on the court makes me?think you’could have been named? Hawk Eye. The guardian angel photos inspire!! I’ve shown them to Hindus, Jews, Christians and Independents.?Everyone recognizes The Light. Another…

  • A Visit from Mom

    On Wednesday, July 5th, my mother came to visit me here in the Bay Area. She arrived at night, and it was the first time she had seen the apartment all set up; she was delighted. The next day we went to the hospital for me to get my monthly octreotide shot…it was a little…

  • 4th of July Climbing Epic

    Greetings, blog readers! I apologize for the lack of posts lately; a lot has been going on in my life these past few weeks. Tori, thank you so much for setting up this new blog! I really appreciate the time you spend on the website.I hope to be in touch with you soon. After coming…

  • Stacey’s New Journal

    In a very belated celebration of Stacey’s new lungs :d here is a much needed new and improved online journal and guestbook! Stacey’s orignal journal, which covers her journey from the beginning in October 2003 through July 2006 (wow!), can still be found HERE as an archive. Want to leave a note for Stacey? It…

  • Note from Stacey

    Here is a picture of Isa and Rupie on our walk to Waterdog Lake on Thursday. They are such dear friends. Isa, it was a true dream come true to attend the Transplant Games with you and Ana. If you have any cool pictures maybe you could post one? Michelle, great to hear from you.…

  • Note from Denise

    Isa – you said 2008 in Pittsburgh… what about the Bangkok World Games in 2007? Sounds much nicer… It is a fantastic place and I would love to meet you all there! xoxo Denise, from Riga